Perspectives by Rev. Feras Chamas

It is traditional at year’s end that organizations look back on its accomplishments. I would like to review my Conservative Government’s record during the past 12 months. We were given a majority government to create jobs and opportunities for Canadians, to support and protect Canadian families, and to put Canada First. 

I am proud to say we have concluded our most productive year with a record 40 bills being passed – delivering real results for Canadians. We made huge progress on bills that will meet our Throne Speech commitments. 

These include bills that: 

• combat harmful online harassment and exploitation;

• protect Canadians from unsafe drugs;

• support injured veterans with priority consideration for public service jobs;

• stand up for victims of crime;

• grant greater decision-making powers to the Northwest Territories; and

• make our prisons safer for our correctional officers.

This Parliament has also been marked by unprecedented success on the part of individual Members of Parliament, who advanced changes important to their constituents. I am proud to report that my colleagues and I have passed a record total of 19 Private Members’ Bills that have become law. As a matter of fact, since we formed government in 2006, a record 39 substantive Private Members’ Bills have received Royal Assent. 

This year we have delivered real results for Canadians by strengthening our economy, creating jobs and supporting families. We have created over 1 million net new jobs since the depth of the recession. We also completed the Canada-Europe Free Trade Agreement which will result in $12 billion in trade and 80,000 new jobs.

Through a productive and hard-working sitting of the House of Commons, we have delivered real results by strengthening our economy, creating jobs and supporting families. Through historic breakthroughs such as the Canada-EU Free Trade deal, by standing firm with our allies around the globe, and by protecting and supporting families here at home, our Government sent a strong signal this year, to the rest of the world, that Canada will be vigorous in its pursuit of new policies and ideas in the service of Canadians. 

Have a very Happy New Year.

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Dear Editor,

I am writing this letter to inform your readers of an important issue regarding a population of individuals who are in crisis. Parents of special needs children have been able to apply for relief and developmental programming under a funding program called “Special Services at Home (SSAH)”. This funding comes from the Ministry of Community and Social Services. Approval for this funding program required that the child meet the criteria and an amount was given based on the level of need. Once the funding was approved the parents had to send in invoices with the signatures from the workers who provided the relief or implemented the developmental program. 

The “Special Services at Home (SSAH) program gave funding to children and adults with special needs. Parents use this funding to have before and after school support, to take their other children to their extracurricular activities, to have a date night, to have therapy done at home with their child, to visit their aging parents, to go to work, etc. 

This funding also allows to the child/adult with special needs to go to community events without mom and dad. This teaches independence and is a normal phase of life to do activities without their parents.

As of April 1, 2013, the Ministry of Community and Social Services is cutting this funding program once a child reaches 18 years old. The SSAH program will only be given to families with children under 18 years of age. 

What does this mean to the families with a child over 18 years of age? 

For some families there will not be the care before and after school. One parent will have to quit their job. It will mean that any extra therapy done at home will not occur and the child will regress. It will mean that there will not be supports so mom or dad can attend their other children’s activities or visit or take their aging parents to appointments. It will mean these parents who have devoted their entire life to their child with special needs will not go on a date, participate in community events together and even dream of a few days away alone. There will also not be outings in the community for their adult child and the hope of their child’s gaining independence will become impossible.

Parents with a child with special needs age just like everyone else. They will face medical challenges, just like you will as you age. They also support their other children through post secondary education, in finding a job, getting married, etc. Without the SSAH funding parents with a child with special needs will not be able to be a “normal” parent to their other immediate family members.

As a parent of a 25 year old child with special needs, I am proud of the job we have done caring for our daughter in our home. Having her in our lives is a blessing and a true joy. 

I am also grateful I have been able to volunteer, support my two other children as they have grown up, had the privilege of travelling seven hours to be present at the birth of my grandson and been an active member in my mother’s life. 

Our holidays consist of a few nights away each year. There is no hope of a seven day vacation and a spontaneous evening out. This is okay. We have accepted our lives as we age together caring for our daughter at home, BUT we cannot do this with the minimal funding we get. 

The maximum SSAH gives is $10,000 per year. This means eight hours a week of help. The average SSAH amount given to families is $4,000.00. This means 3.5 hours per week of help.

Imagine you are told you will have an aging family member come to live with you next week. This family member requires 24 hour care. He/she cannot be left alone at all. 

Your reaction is that you love your family member but you are not able to care for her/him because you work, you have activities at night, you volunteer, you help care for your grandchildren or aging mom/dad. 

The response to you from the Ministry is “WE DO NOT CARE!”. 

Try to imagine caring for an aging loved one for 30-60 years. This is what parents of a special needs child does and they are so proud of this special task. 

The Ministry of Community and Social Services has decided that now there will not be relief funding for a parent with a special needs child turning 18 years old. As a result, some will lose their jobs, some will not be able to cope, many will no longer be able to attend functions as a couple, some will get depressed, and so much more. 

I also have to add there is no new funding being provided by the Ontario government for adults with a developmental disability. The waiting lists are growing and growing. It is up to 30 years to receive a residential placement and this may not be the choice for everyone. The entire system to assist those with a developmental disability is in crisis.

Jim McDonell MPP will host an evening on Tuesday, October 9th at 6:30 p.m. at the North Stormont Place-Community Centre, 16299 Fairview Dr., Avonmore to hear from the families who are being affected by the cut of SSAH funding. 

I encourage others to attend and hear the families’ stories. Please share this important family forum with those in your life who have a child/grandchild with special needs. 

We need to come together to share, listen and state loudly that in Ontario we need to take care of our most vulnerable population and their families.

Sincerely,

Terry Boyd

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